wella day, says i.
i mean to do better at these diary entries if for no other reason, i have so much to tell. some stuff will only get highlighted and i am betting on one or two things getting left out or in the wrong order or maybe i will just say things that confuse you. i hope i don’t embarrass myself. i’ll be like that drunk friend that peed in their pants. i won’t know unless you tell me. and if you do, i will probably cry.
on friday, my lung-doctor told me AGAIN that i don’t have cancer or tumors or fluid buildup in my left chest and lung. all very good stuff.
the alvioli over in that poor solitary lung, down in the bottom, could be doing better.
i just bluntly ask him how long i could expect to live the way my life is from here to the end. ( i do understand it will get worse before the end.) he told me that if i took good care and stayed active as much as possible, eat well and stay the hell away from sick people, i could live where i am in this disease right now for "years and years". then he took my hand and squeezed it as he looked me in the eyes. i did not cry. i smiled. he repeated what he said about catching stuff from sick people and said that now it was very important. he felt the need to talk about critical care and blood infections for prolonged hospital stays and i started laughing and promising i would take care around people.
i can make this change. i don’t like it much.
……..okay, there. i took out the *f*-word.
all my family is good. ben fell off a monkey bar at school a couple or 3 weeks ago and i don’t know if i said anything about it. he is fine now and i also remember now – *poof* that i wrote about the email….. like i said, he is fine. he asked his mom to help him write the email i got back from him so it would be spelled better and it wouldn’t take the rest of the night. he likes my dog. he says she is funny and pretty.
blanca, aka rat-girl, is pretty good at anarchy by way of confusion. one day she is one way, following directions and behaving and then she will have a brain-leak and become a poopy-goober in a dog suit. she got her first rabies tag this weekend.
i already had to put some swavorski crystals hanging on it and now she tinkles everywhere she goes. her features have changed hugely. she is thin and longer-legged. lots of muscle. still got this buddha belly going on. and loves to have it rubbed.
blanca dances around at the back of tigger all the time, poking the poor old slow cat in the back end and dancing around to the front, wanting him to chase her. i think it’s mean and i make her stop. i tell her that i wish tigger would catch her and get her good with his paws.
tigger don’t have claws in the front. they were removed.. i did that to him back when i was thinking on it a lot differently….. i also taught him to box…… i would reach out and gently swat him with my hand and growl. he would swat me back and growl. he seemed to like playing it. he never initiated it, but he also didn’t leave when i did. tigger is also pretty stubborn and does not like to give in.
well tigger was on my bed and he’s started parking his big old tired cat butt right at the top of the bed where the doggy-stairs come to a stop. this makes blanca very nervous because now she is within reach of the old guy. and she is scared with good reason. tigger does not like the new puppy and i don’t really blame him. and when blanca tried to ease by him, he moved quicker than i’ve seen him move in a long time and smacked that puppy on the top of her head 5 times. each blow was loud too. she tried to climb the wall and peed on my bed.
i cleaned up the bed and petted the dog after i told tigger good job.
on saturday, i went to moody gardens with dustin and a group of his friends. we went there to see "bodies revealed". it was beautiful and solomn and creepy and enlightening and sad. i started my trip out in a wheel chair that the boys got for me. i have to say i was grateful for it and just decided it was time to put aside anymore shame or embarrassment, so i could go have fun with my kid and his friends. i was able to wander around pushing the chair like a grocery basket and if i needed to i could just sit down. and i had a place to carry around the heavy air tank.
i stood in front of the display of copd and lung cancer for a long time studying the specimens. someones lungs. for real. and they died. and. that. was. sad. i felt a little teary and i moved on so i didn’t do anything weird in public like blubber and have to be taken out of the exhibit like a child. some of it made me uncomfortable. like it was not as respectful as i thought it should be. i asked myself to cut them some slack, because if it bothers other folks, they are not making any noise about it and maybe it was just me. some of the posing was a little humorous-looking to me. and it might have been just the way i percieved it.
i do not regret going at all. there was a display of the human arm’s arteries, and cappilaries. just that. no bones, no skin or tissue. and the display was lighted from the bottom and shined up into the works. it was stupendously beautiful. we stood and disscussed bio-recognition and i see that no way in hell can two people have the very same capillary placements. so now i know how bio-recognition works.
after the field trip, i went to dinner with them to a sushi place. i ate this thing called spider roll. it was really good and i liked this one called shaggy-dog the very best. i tried one with avacadoes on the top of it and did not like it much. and i declined to try the eel. didn’t like the look of it much. i tasted warm sake. a few sips. it lands in your tummy and in your bloodstream pretty fast. and i tried this thing called a sake-bomb. that was not good. i am not a fan of beer. and i had already made up my mind i was not a sake fan either. the concoction tasted soapy. it was fun to try.
on friday, after the doctor’s office my friend patrick that drove me to the doctor’s office on the mainland, went to lunch with me and we talked for a couple of hours. i very much enjoyed it.
there is more……. but i can’t find my butt and i know that it is tired. i’mma go look for it and take it to bed.
May God bless you, my friend, and be well.
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i love you and you need to stay out of crowds so you will not catch germs.
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i wish i were able to do housework
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so stay out of hospitals. ok?? they are not healthy places. i am delighted to hear from you. i care.
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One thing I learned from Savanah’s illness is that even those with life-threatening diseases can live fully and often out-live others who get hit by trucks or such. We cannot escape death. What do we do here and now. You are making the most of your here and now, from what I read. You’ve probably talked about this before and I missed it, but is there a chance for a lung transplant? Orstem cell therapy? You are awesome!
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Warm hugs to you. You are such a blessing to all of us.
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I’m with Linda Kay…you are awesome! You cannot imagine the feedback I get at work about your beautiful jewelry. The pearl and swarovski crystal bracelets get rave reviews and commentary each time I wear them. Everyone loves the style, look and various colors. Make more and I can sell them here for you! As you know from my jewelry orders, my name is Lori Chittenden and that is the name of myFB account. I hope to see you there and include you on my list of friends. Take good care of yourself, Ruby…I am thinking of you and sending you good, kind and loving thoughts everyday. Hugs and love, Lori
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LOL Stormy is our only declawed cat and she give some great boxing slaps if she doesn’t want you near her. Shes a old grumpy kitty too. YEAH on living years and years.
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May your alviolis stay moist and pink for an eternity. 🙂
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Yes, leave all the germs to other people!! Some things don’t need to be shared! You gave me a good idea with those swavorski crystals. My bff makes wire wrapped jewelry and has an abundance of them. I think I will buy some from her so Gretch can tinkle all day. I agree with you about sake! It should be experienced, once, not made a habit. Yuck!
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Warm smiles…
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I cracked up reading about Tigger beating up poor little Blanca…just because I know how evil Tigger can be…that and her climbing the walls peeing…good grief. Thanks for ruining “Bodies Revealed” for me! jk… I’m headed there with my sister this weekend. I have been wanting to see it since they banned it in the US years ago. It obviously got un-banned… and I’m ready to see it.
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and yes, I have my family’s best interest in mind. We have been very happy since she left. No yelling, no arguing. I am working on myself. Making Jamie happy again. Trying to find my beautiful again. And yes, I really need a rock for my neck. I see rocks all the time, and think “oh I need that”… =)
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I hope everything stays well for you. Maybe others were as influenced as you but didn’t show it. I probably would have been uncomfortable with it because of my dad and his COPD. RYN:Thanks…never been on reader’s choice. It’s weird to have that amount of notes. Didn’t know that many people paid attention to little ole me.
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I got to go on this trip with you and it was a blast! It just happened to coincide with my birthday time and being with you that day was a gift I will never forget. Yes, the body show was amazing, and scary, and a little sad. The sushi dinner was fun and I didn’t like the sake bomb so much either.. and not just cause I was drivin’. Now that I know your doc said more activity….Well *evil grin*
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rose of Texas robin put up pictures of her new bracelets they are very pretty love I 3was also told to stay out of hospitals and nursing homes germs love Betty
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ryn: Can you get me that guy’s name and info? I wonder if he will come to Waller? Also….do you have any stuff left over from the pink and copper necklace? I’d love some long dangly or hoopy earrings to match. Also…will you send me the recipe for the witch’s brew you made to clean silver? All I do is want, want, want…right? Yes – those girls are nuts but they are fun and they are all so sweet. They are the ones who came and fixed my garage ceiling about a year ago.
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RYN: I am sad to read that. I mean to intimidate no one (except republicans) in my journal. It is what it is, A Vagabond’s Thoughts on Life. Nothing more, nothing less. No earth shaking medical or scientific discoveries and no really deep, dark secrets. Just thoughts. I really love the bracelet.
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