fast update

Just got back home tonight. And firstly, thanks for all the encouraging notes! Secondly my father came through the surgery fine. He’s STILL in Intensive Care, waiting for what they call "bowel sounds" before they put him in a regular room and let him start eating again. Apparently it’s not uncommon for it to take this long, though. My brother talked to the doctor last night, and the doctor said he’s doing very well. And could go home Tuesday or Wednesday. Baker B and I went by to see him before heading home and he looked and sounded the best he has yet. They’re supposed to get him up and walking around tonight – or have already, I guess – which ought to help. He hasn’t had anything to eat in a week so he is pretty lacking in energy. They haven’t gotten the pathology report back but the surgeon said it didn’t look like it had spread. It was a kind of big tumor but had clean edges.

My mother is another story and one reason this will be short and probably incoherent is that I’ve gotten, oh, ten minutes or so sleep in the past three nights. She has to have constant reassurance that we’re not leaving her alone. CONSTANT. And by constant, I mean she would literally ask me every thirty seconds how long I was going to be staying, and then would say, "I don’t know what I’ll do when you leave – I’ll be all alone!" And I would say, "No, you won’t be alone, J and B will be staying with you." And she would say, "Well, I don’t know if they will or not." And I would say, "YES, they WILL. Nobody’s going to leave you alone." And she would say, "When are you leaving?" Every.Thirty.Seconds.For.Four.Days.

I really really really thought I would lose my own mind more than once. I would think, if she asks me ONE MORE TIME when I’m leaving, I am GOING TO SCREAM. Hysterically. And then she’d ask me ten million more times when I was leaving. And she’d ask if I’d talked to my brother and did they know when I was leaving and maybe I should call him and had anyone told him Daddy was in the hospital? And when was I leaving?

I could sometimes distract her by getting her on another subject, but she’d always go back to that one. It went on the entire time I was there. She’d also ask when Daddy would get to come home. And how long he’d be there. And when they were letting him come home. And how long had he been there. And when would they let him come home. Over and over and over and over.

She would go on and on about hating to stay by herself and how it’s terrible to have to stay by yourself and several times she asked if I didn’t just hate being by myself. And I’d think, "I would gladly sell my soul to Satan himself right now, for half an hour alone. Okay, TWENTY MINUTES alone!!!! We could probably make a deal for TEN MINUTES ALONE!!!!"

Of course I did not say that and I tried very very hard not to be impatient and not to be curt and to be pleasant to my poor mother because I KNOW she can’t help it and I KNOW it’s not her fault and I feel SO sorry for her. But after four days the unkind things I was thinking were REAL close to coming out of my mouth more than once.

I do not know how Daddy stands it. Of course, she’s not so bad with him there, since this is largely a result of him being gone and her being totally out of her routine. But still he has to put up with the repeato questions. And the not eating.

She of course did this to my brother and his wife too. And we’re looking into things like adult day care, which she WILL pitch a fit about, but we can’t keep doing this. I’m going to take off Friday and go back for the weekend, and I already dread it. HOPEFULLY Daddy will be back home by then so at least I won’t have to be with her every waking minute – which are most minutes in the day and the night because she also wanders around the house and I can’t sleep for worrying about what she’s doing. And she wakes me up if I DO manage to go to sleep because she’s worrying about who is in the house with her. And in a very disturbing incident night before last, she woke me up at four in the morning VERY upset because she’d looked all over house for my brother, and couldn’t find him. "John’s not here!" she said. I said, "Ummmmm….. he’s at HIS house."

She said, "NO, little John! He’s not here!"

I think she thought my brother was a child, and he wasn’t in his room. I kept telling her he was at his own house, and she said, "Well he should have TOLD us he wasn’t staying here tonight! It really scared me when I couldn’t find him!"

She finally was convinced that he was fine, and at HIS house, but I sure couldn’t go back to sleep after that. Maybe she’d been dreaming – that was very bizarre. And very upsetting.

ANYHOW, my father is currently much less of a worry than my mother is, and now I’m going to bed as I’m pretty certain I’m making VERY little sense at this point. But at least Daddy is doing well, so things sure could be WAY worse.

 

 

 

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your dad needs help. it is just to much being a constant care taker.

I’m very happy to read that your father is doing alright. It sounds like your mum needs a care giver so you poor dad could get better faster.

August 10, 2008

Best wishes for a very deep and refreshing sleep!

August 10, 2008

I’m glad to hear he’s doing ok 🙂

Beth you know how hard it’s going to be for your daddy to recover while trying to take care of your mother? She definitely has dementia and you know that can be a slippery slope. I’m so sorry. So so sorry. I do know why your mom was looking for your brother-it’s a long term memory thing. Patients with dementia can remember a field they walked through on the way to the local creek when they werethirty years old, but cannot remember that it didn’t happen yesterday. Your momma, at the VERY least, needs daycare. I shudder to say more because I know that’s not what you want for her. You must however, take care of yourself at some point. I will continue to hold you in my thoughts.

i am glad your dad is doing ok and i’m wishing peace to your mom …

August 11, 2008

That’s good news about your dad. And yes, your mom will have to go to adult day care or something so that your dad will recover faster! I’m sure it will be Wednesday by the time you wake up and read this, so hope you had a good, restorative sleep.

August 11, 2008

i’m glad your dad made it thru the surgery ok. caring for someone with alzheimers takes it’s toll on the caregiver…big time. i didn’t fully realize what my dad went thru until i had to take over myself. i think you see what i mean. hang in there. none of any of it is ever easy.

August 11, 2008

I made an offer here on OD once to buy people’s souls. I didn’t get any takers. One or two said that they had already made their deal.

August 11, 2008

Glad your father is doing fine. Wishing your family the best in figuring out the best for both him and your mother. Hope you feel a bit refreshed today.

August 11, 2008

I’m glad your dad came through surgery ok. He will need some help with your mom and I hope you got some much needed rest.

August 11, 2008

It might be that what she is saying is I don’t like when Daddy leaves me alone. Because he’s been there for her whole life, really. Maybe she’ll be a little better when he gets home again. And there are assisted living places up here where the healthier partner can live there, too. There are people available to provide the care-giver breaks so they can go out and be with other people, shop, just get away for a bit. Do they have such down by you and would it be difficult to talk your dad into? Sometimes the healthier person will balk because it seems too much like a nursing home. *hugs*

August 12, 2008

Sunday d and D visited Nana in the assisted living center. She was hugging and talking to a baby doll when they arrived. As they were leaving she tried to give the doll to d, she insisted it was his.

August 12, 2008

I’m glad Uncle W is feeling so much better. Once he can start eating, he’ll improve even faster. My heart goes out to you and Aunt D (and the rest of the crew).