Tuesday 4/26/22

5:29am  The aids didn’t put me to bed until 1am. I was too tired to be pissed.Then, when I finally got in bed, I couldn’t sleep. Arthritis pain and  urinary incontinence kept me awake. I think I got a couple hours sleep last night. She came in at five gave me a good sponge bath, changed my depends and got me in my wheelchair by 5;30. I’m getting great care despite the odd hours.

I am so tired right now.. I do not know what is keeping me awake. I wish I could get out of this chair and go to bed. It seemed just when I was ready to fall asleep they came to wake me up. Not fair I say. It is not far at all. In their defense I did not have to get up. They did ask me if I wanted to wake up. I wanted to be up for breakfast so I said yes.

Chocolatechip called. Someone knocked on her door at night. She is going to start keeping a log. I said I don’t think George really cares . She said I’m doing it anyway I told her about my problems. She said that sucks?bad both had a bad night I said.

Fell asleep as I was writing this. It is almost  seven. They will soon be serving coffee with breakfast. I can’t wait

1:16pm I had scrambled eggs, two slices of toast, hot cereal, two hot coffees and a glass of oj for breakfast. I felt a little bit better. Then Darla,from PT,came to take me for my daily work out. I didn’t do very well today. I only stood for two minutes. Then I could only do half the leg exercises. I could hardly move my left leg because it was very stiff. I tried and it hurt like hell but at least I did  some of the e exercises

I did somewhat better with the arm exercises. Mike had me use the battle. Then he wheeled me over to the exercise bike.  I worked out on that with my arms for fifteen minutes. Muscles were sore when I finished. The whole routine lasted 30 minutes. My workout perked me up some but I still felt dead to the world.

I was tired and miserable all morning. I slept in my wheelchair some. I got dozed on and off. Then Chocolatechip called. She just got back from a shopping trip. Also she had transportation to take her to Tri State Medical suppliy. She got her diabetic tennis shoes. Then she went shopping at Shoppe and Save where she bought groceries. She had a busy morning and just got back in time for her worker.

Chocolatechip had this physical therapy appointment. She cancelled. In fact she sort of cancelled her whole pt appointments.  She was afraid of getting in trouble with Medicaid for non compliance. She called her Dr about it and he was there they can’t touch her. So no more pt for her.

Our phone conversation was very brief. I sort of fell asleep after we finished. I slept until lunch. I had cold claw, macaroni and cheese, dinner roll and a chocolate cake. I had two cups of coffee and a glass of oj. Breakfast perked me up good and I feel better.

7:11pm This was a very bad day. I felt better after lunch but still felt like shit. I wanted to crawl into bed and never get up. But I stuck it out sleeping in my wheelchair. I slept on and off until supper. I had a lousy fish sandwich, potato wedges and peaches. I had one cup of coffee and a glass of fruit punch. Then I think I feel sick. My stomach is queezy. I hope to God I don’t get sick tonight.

Talked with Chocolatechip after dinner.She was in high spirits. She went on about a phone conference with her therapist Erica. This is to tomorrow at eleven. We talked about her trip to Morgantown. We do not know why this is scheduled since her MRI came back normal. I said I think they do this just to carve Medicaid. She agreed with that.

I didn’t have much to say except I went on about how shitty I felt. I said I was still beyond tired. We can’t understand why I’m on this crazy schedule. They kept me up more than half the night and got me up at five. No wonder I felt in such a shitty mood. She let me go though. I was falling asleep at the keyboard.

One thing I did say is I’m counting the days I can buy books. There is sight more days. Time will go by fast. One book I’m anxious to read is by David Baldacci  Dream Town. Then I want to read that bio on Judy Jordan and two other books about Steubenville, OH when it was a Mafia town. But first I got to finish Soldiet of Freedom. Because of this crazy schedule I’m on I still have a ways to go .

I’m awake now. I couldn’t stay awake all damned day. Now I feel wide awake when most people are winding down. I wish to hell I could get on a normal schedule but I always was  night owl. Oh well, I’m going to read for awhile. Maybe that might make me sleepy. Good night.