Being the broken doll

I am so, so tired.  Sometimes it feels like I’m dying, so impossibly slowly.  So much pain, crisis after crisis.  Not enough time to come up for air.  No-one who can make it stop, no-one who can even get my life under control – clean the house, get rid of the ever-present mould that makes every nerve feel like a swarm of tiny insects. 

My grandmother is treating me like a burden now, an onerous obligation.  She invites me to dinner, then leaves me to eat alone while she talks to others on the telephone.  At first I was insulted, angry.  Then I realised that she means it.  Take it or leave it, like it or lump it.  I’m only there because she feels obliged to feed me once a week. 

My only uncle emails his entire extended family, down to the children of his cousins, to announce the birth of his first grandchild, and somehow forgets me.  My aunt schedules a date to plan the family reunion with me, and then forgets. 

Oh sure, I could accuse myself of cherry-picking evidence, but I’m not really.  Being treated like this is not unusual, it’s the norm.  I’m not even surprised at that.  I really don’t see any reason to deny that I am, all things considered, a burden.  I’m not claiming to be a bad person or an intrinsically incompetent one, just chronically ill.  I’m not providing anyone with anything worth as much as my living uses up.  And even if I were, my illness keeps me dependent, so that what I give is not valued.  I can’t just leave and go elsewhere.  I cannot make myself scarce enough to be missed. 

These difficulties are not mine alone.  I imagine they’re shared by most people whose illnesses force them to rely on others. 

I once worked in a hospital which had been an institution for the severely disabled.  It had a long and horrendous history of abuse of its patients.  The weak, the defenceless, the dependent… they attract abusers, they attract abuse, my boss explained in a whisper. 

You might think chronic suffering would attract sympathy.  Perhaps it instead activates the impulse to sneak up and quietly wring the neck of the endlessly whimpering thing.  Restore peace. 

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February 11, 2011

My grandmothers were both grumpy wenches when they were around me and I suppose it’s awful to say but I don’t really miss either of them. I’m not saying I’m glad they’re dead, but I’m glad I’m not obligated to visit them and I’m glad they’re not obligated to feed me against their wills, which is what it always seemed like. Lately when I read articles about aging, the theme seems to bethat people can get used to anything. The articles say people incorrectly think, “Oh, I could not live if I couldn’t be independent,” or “Oh, I could not live if I needed somebody to help me go to the bathroom” or “Oh, I couldn’t live without my legs” and the articles all say this stuff isn’t as terrible as it seems and people can get used to anything. I’m not sure I find the articles convincing and I certainly don’t find them reassuring.