Silver linings

I’ve grown quite fond of Mondays. After a long weekend with a full house, everyone scatters. I’ve become so dependent on that 2 hours of quiet during the week when M is at preschool. By Sunday, I am so overwhelmed and stressed the walls start closing in on me.

M had Speech today. He missed last week because they were wiring him up for his 24 hr EEG test. Before that was MLK day and then the holidays. He’s really been missing Ms. Jenn. It showed today. He wasn’t very cooperative and wasn’t using the talker like he normally does. I am looking forward to getting back on our normal weekly schedule with her. Out of all the therapists he’s had, she seems to be the one that resonates with him.

S woke up puking this morning. I knew something was wrong when I heard him sit down in the shower this morning. He’s usually in and out and back to his room by 6 am. He came in and said he wasn’t feeling well so I let him go back to bed. I went down at 6:30 am to get M up and could hear him vomiting through the door. Dammit. We don’t need anyone else getting sick around here. Thankfully when I went to check on him again at 8:30 he was fine. I think he ate too much last night and then scarfed down a pink cow before bed and it made him nauseous. It happens a lot with him but I was too tired to ask a bunch of questions this morning. He had a ton of stuff going on at school today so I ended up dropping him off on the way to M’s appt per his request. He was totally fine. ????

I managed to carve out 30 mins for myself this afternoon. I am terrible at self care but my health is shit. I checked in with the doctor about that weird leg pain I’ve been having. It’s likely a side effect of one of my meds and not a blood clot. See, good news does come sometimes.

Speaking of good news, M’s EEG came back normal today! Seizure medicine will not help his language delay as his doctor had hoped. I was relieved to hear it was normal, but it was just another tick off a checklist. On to the next. At this point, we’re knee deep in medical bills and not much closer to getting M the kind of help that will benefit him most. So fucking sick of being forced to chase a label to appease his school and doctors.