Epilepsy sucks

Tonight I ended up sitting on the floor with my daughter 3 times in the span of a few hours. Twice in public once at home. I feel for her… My heart hurts and my stomach drops like it would on a roller coaster every time she has a seizure. The worst are the ones in public, she gets so embarrassed. She doesn’t understand why she can’t be ‘normal’ anymore…. It’s hard to wrap your head around something that just started happening one day and hasn’t stopped since. I hate everything about this for her I hate that I have to sit on the floor with her while people look at us like we are weird… Oh yeah we just looooove to sit in the middle of the floor in the middle of the freaking store it’s the cool new thing to do… Next time I’ll invite them to sit with us.

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February 11, 2018

That must be so hard for you all, have you found any kind of treatment that is helping? I’ve heard keto diets are fantastic for epilepsy, but I’m sure you know that. I hope your daughter is okay 🙁 sending love.