another chemo treatment done and a cool idea

Yesterday was my 2nd to the last chemo treatment. I have had a severe negative side effect from the chemo and my oncologist wasn’t going to give me an infusion yesterday. This is the first time that they didn’t want to give me an infusion. I talked them all into it. I have a very high pain tolerance and I am almost done so he let me!!
The side effect is my finger and toe nails.They are black, purple and red and falling off. It feels like my hands got slammed in the door. I have lost two toenails too.This puts me at risk for infection. I can’t do very many tasks without pain such as buttoning my pj’s and pushing buttons on the microwave. Anything that puts pressure on my fingers. Yes, typing on the computer and playing the piano hurts too. But I can’t stay off the computer!!
I have to avoid any tasks that could potentially harm my nails or get them infected. Like washing dishes, taking out garbage, gardening etc.  I also have to put Vicks vapor rub on my fingernails and toenails at night. I tried it lastnight and it helps. (it is a topical analgesic)
Today starts the diarrhea. Sorry if it’sTMI but every chemo treatment does that to me for 2 or 3 days. I have so many side effects you wouldn’t believe it. The steroids usually keep me up all night but finally lastnight I took a XANAX and 2 Benadryls and it made me sleep all night.
Another thing that I wanted to journal about is the night before chemo I literally cry myself to sleep. I don’t want to wake up on Tuesday because I know I have to go to chemo. John will hold me and be so gentle with me. It feels like I am going to go get run over by a truck. Well, normally the kids are sleeping and Tuesday night Tara heard me. I didn’t want to upset her. John had her climb in to bed with us and we held hands and Tara said a special prayer for me. It was so sweet.
I am going to put together a scrapbook of my cancer journey. Starting with Thanksgiving day when I found my lump. I had put out Great Grandmas china from 1937. It was so beautiful and I took lots of pictures. Then I got my hair cut really short because I knew it was going to fall out. I had surgeries in Dec and Jan and in Feb my neighbor had a hat party for me and we had 37 guests and I got over 50 hats.
All of this needs to be journaled and put in a scrapbook. I will start on this right away. I think it will be healing for me.
I have pictures of the Susan G Komen walk for the Cure.
I will try to journal some of my thoughts and feelings about cancer in this scrapbook. It feels important to me now. Like it’s something I really, really need to do.
The thing that prompted me to do this is because next Tuesday is my last chemo and I was thinking that I need to take pictures of my chemo nurses with me. And my chemotherapy oncologist and radiation oncologist.
Well, I need to get a move on. I’m not even dressed yet.
Please pray for my side effects. That my nails won’t get infected and fall off. Also that my stomach will feel better soon. I’m almost done~#!!

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Gosh, I am so sorry about the finger & toenails “side effects.” I had NO idea about that. I DO keep praying for you, and I will add this, too. I think your ScrapBook is a wonderful idea!!! I am glad John is so senstive and loving, and Tara, too!!! I love your strength and courage. Thank you for your note, Susan. I am glad you like Aff Vio!!! :*)) love N BigHugz!!!

June 10, 2009

I’m thinking about you always. You are such a brave and strong woman, and I’m glad your family is helping you through this. *HUGS*

You have been through so much in such a short time. I hope the chemo kicks the cancer’s butt! (Does cancer have a butt? LOL!) The fingernail and toenail thing sounds so painful! I’m glad you’re almost through. You are very brave, strong and positive. It’s great to have such a wonderful support system, especially your lovely family. And all those hats! Very sweet!

My heart is SO with you — you are brave and I agree with you getting them to do this treatment – LET’S KILL THE CANCER, huh? My friend is the first person I have known that has had a recurrence and this was such shock to me — so many people I have known with good results and no recurrence. YOU will be one of them, I pray!

June 11, 2009

You are so much in my thoughts and prayers even though I’m not writing or noting much right now. I am soooo glad that you have 1 more treatment and then it’s over. You’ve been through so much and I’ve seen your inner strength grow so tremendously than what I saw just a few months ago. You are a strong wonderful woman. Never forget that. God Bless you, heal you, and be with you every single second!

Wow, you might have a high pain tolerance. I only thought I did. The nails falling off sound so painful. Are you allowed to bandage them up? The hat party sounded like a really cool idea!! Glad they had that for you. And the scrapbooking about your health journey with cancer will be very inspiring to see how far you’ve come, and you can share it with others. Happy to hear that your chemo is almost over with!!! :))

June 12, 2009

Hugs. Hope you are better soon.

June 12, 2009

I am so glad for you that you are near the end. I’ll keep on praying. I think making the scrapbook would probably be cathartic for you and will help in the healing. I think it’s a very good idea:)

June 12, 2009

I’ll continue praying for you and your family.

You’re done!!!! (Or at least I hope you are!). I hope the cancer is long gone. I bet that night was very reassuring for Tara. I think of your kids often.