Turner’s Syndrome
One of my student’s has a lot of problems and has from the beginning of the school year. She was a crackbaby at birth, to start, which is heartbreaking that any woman could do that while she is pregnant.
She had a lot of health issues as far as her hearing and ears went and she had to had tubes in, etc. She was also prone to getting sick quite often and has missed a lot of school this year.
But she is an incredibly smart little girl. On the first day of school, she walked in to the classroom and read the school theme that was on a bulletin board. This is so amazing because these kids are 5 years old. Socially, she has some tougher times, though.
She started to have accidents at school, also. And not just potty, but diarhea, etc. and was hardly even eating. Her grandparents were really struggling to get all theses health issues under control (that’s who has custody).
Well, to make a long story short, they thought she may have had Fetal Alcohol Syndrome (FAS) but also needed to get some genetic testing done because the term Down’s Syndrome was thrown around. After having this testing done, it came back that what she actually has is called Turner’s Syndrome.
I’ve been doing a little research on it, and it’s so sad. She will, more than likely, be infertile. A lot of what I’m reading sounds like her, although, so did the charcateristics of FAS, when I read about that. I don’t really know much, though, about this, other than what I’ve been reading and while the family is very good at keep me informed and in the loop, I can’t help but feel like there is more I should be doing.
Her family wants her to be treated as normal as possible, and I agree with that. Yet, as her teacher, I feel like I should be doing something else to help her at school more. I’m not exactly sure what that might be though, as I really don’t have much experience with dealing with these kinds of things in my personal life, let alone in the classroom.
It’s a lot to contemplate and try to understand.
Til next time, I bid you adieu. Ciao, bella.
i would think just being understanding and attentive would be the best thing you could do for her. 🙂
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if she’s full turner’s she’s definately infertile. and she may have celiac disease, which may be why she’s having diarrhea.
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You can only give much love, faith & understanding in such a situation. There’s nothing more one can do. A self-discipline to take care such an ill child requires a lot of courage, patience & a strong will. I know this because my son was very ill for few years since he was baby. He had a complication after the birth but now he’s fine. Glad that he’s healthy & active. Thank you for your notes.:)
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cool. i teach prek and this is my first year. i love it.
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whole day in a public school. unfortunately, i have too much student loan debt to not be in the public school system. in a perfect world it would be half the kids and no para in the room,lol. i have 20 kids AND i have to work to keep my PP on task
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Wish more teachers cared for their kids like you do! Hats off to you. Teachers are the unrecognized heros of our universe! Many prayers and much respect to you!
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An above noter mentioned Celiac disease which was what came to my mind as well. This can only be treated by diet. It is an intolerance to wheat gluten. A person might not have the gene for it but still be equally sensitive to gluten as my daughter and I are. Untreated it can cause serious damage in every respect. Mental,emotional and physical. And it is fairly common but not very well known.
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